Pacing, not pushing: rethinking productivity when living with a long-term health condition

Pacing, not pushing: rethinking productivity when living with a long-term health condition

Many of us grow up with certain ideas about productivity. We learn that working hard is admirable. That pushing through difficulties demonstrates strength. That success comes from perseverance, discipline, and determination. These beliefs can be helpful in many situations. They may have supported us through education, careers, family responsibilities, and personal challenges. We often receive positive feedback for being reliable, capable, and productive. However, when living with a long-term health condition, the relationship between effort and outcome can become much more complicated. What once worked may no longer be sustainable. You may find yourself wanting to approach your health in...

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Identity and self-worth beyond illness

Identity and self-worth beyond illness

Living with a long-term health condition can gradually shape how you see yourself. At first, the changes may feel practical. Adjustments to your routine, your energy levels, or what you are able to do day to day. Over time, however, these changes can begin to touch something deeper: your sense of identity. Activities that once felt like a natural expression of who you are may become less accessible. Work, hobbies, relationships, and everyday roles can change in ways you never expected. This is not simply about doing less. It is about the meaning attached to those parts of your life....

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When people don’t get it: handling minimisation and advice

When people don’t get it: handling minimisation and advice

One of the more painful aspects of living with a health condition is not always the condition itself. Sometimes, it’s the reactions of other people. You may have spent months adjusting to symptoms, navigating appointments, managing uncertainty, or coming to terms with a diagnosis. Yet a brief comment from someone else can leave you feeling surprisingly hurt, frustrated, or alone. Not because it was particularly cruel. In fact, it may have been said with the best of intentions. Perhaps it was: “But you look fine” “At least it’s not worse” “Have you tried…?” “Everything happens for a reason” “You just...

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